Connect with others who understand.

Sign up Log in
Resources
About myALZteam
Powered By
Real members of myALZteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Hi Anybody Try The Infusion Drugs? Andumunb??? Spelling???And Has It Helped?

A myALZteam Member asked a question 💭
January 4, 2023
•
Be the first to like/hug
A myALZteam Member

It also gave me nightmares, I have always had them but these were worse.
I took Namenda and I couldn't handle the side effects.

January 14, 2023
A myALZteam Member

My husband was for 21/2 years in the trial for this new drug run by Biogen. They decided to pull the plug on it as it didn't seem to be helping. Then a year later Biogen started the trial back up again as they found that in high doses they saw promising results for the removal of Amyloid plaque. BUT it has some potentially dangerous side effects . Swelling of the brain and brain bleeds! The FDA where very hesitant to allow its use but financial profits and perseverance by some Big Pharma companies persuaded FDA to agree to its use. However it only deals with the elimination of Amyloid plaque and NOT the Tao which also is part of the problem. The drug has to be administered by infusion and I do not have the full data, but it will be horrendously expensive! 'Profit anyone?"
My husband and I talked in great length about it, and he decided not to bother taking it. His comment was; "why prolong the inevitable? Let me go as soon as possible !!
The only 2 drugs that are really so far used are Aricept and Namenda. We took my husband off aricept after 6 years as it gave him terrible nightmares.

January 14, 2023
A myALZteam Member

The only drug the doctors tried for my husband, did not help at all. Don't recall the name of the one. But the one you mention may not have been available before Ron died 2-years ago

January 5, 2023

Related content

View All

What Is Meant By "ADD PROVIDER"?

A myALZteam Member asked a question 💭
Phoenix, AZ

Anybody Love One On Donepezil..

A myALZteam Member asked a question 💭
ft worth, TX

Do Your Loved Ones Complain Of Widespread Pain?

A myALZteam Member asked a question 💭
Richardson, TX
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in