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Early Onset Frontal Lobe Dementia.

A myALZteam Member asked a question 💭
Cape Town, ZA

There don't seem to be a lot of people on this site supporting someone with frontal lobe dementia. Am I right?

January 11, 2019
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A myALZteam Member

Hello....the unique thing about frontal lobe dementia is that its considered rare. It usually affects much younger people - in their fifties - and has very different behavious including a dramatic change in personality. This can go on for a long time before one realises that there are other things happening. As we don't expect a diagnosis in our fifties we think its a mid life crisis or depression etc. It doesnt affect memory much. It does however affect speech - actual verbal words become difficult to say. Swallowing is another issue. Boundaries dissapear and inappropriate behaviours appear like touching others sexually - not harmfully - but just reaching out and touching. The abiltiy to comprehend and undertand what is going on is fine but articulating is gone or going. Understanding things is ok but the outcomes of choices and consequences vanish. Let me know your thoughts............

January 16, 2019
A myALZteam Member

My husband was diagnoised with Frontolobal temporal Dementia in November 2018

February 22, 2019 (edited)
A myALZteam Member

His behavior is different than other types of Alzheimer’s . There is a web-site for Frontal Temporal Dementia. I haven’t been on it for a while. I will find it and let you know the address.

January 12, 2019
A myALZteam Member

All dementias are similar. None are nice. I think we all support each other....

January 12, 2019
A myALZteam Member

HI , I have lived with frontal Temporal lobe since 2007 and i am still here. I READ ABOUT THE MEDICATIONS I TAKE an understand how they basically help the Brain. I take Namenda and Exelon. Each medication HELPS the brain in a different way'. I read in 2007 that taking FOLATE CAN HELP REDUCE THE RISK OF ALZHEIMER'S BY 55%, so have taken that also along with some other mediations. It was hard at first to try to keep control of my brain. I would get so frustrated and upset. I kept trying and was able to keep a journal of what was happening to me. I found I could write what i could not say. It helped a lot. I have been able to go forward and do ok. My oldest son also takes the same medications I do. He was told in 2008 he had Alzheimer's. The info about folate is still on the computer. I hope this will help! NEVER GIVE UP!

September 24, 2023

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