Excellent article. It should be required reading for so many caregivers. My behavior as well as emotions before and after my wife's passing took different forms. Before her passing, the term ambiguous loss might well include great disorder, frustration, and even anger. It is difficult to properly manage an impossible situation. Following her passing, my emotions ranged from denial to the actual study of death itself. This is a rather long story, but the concluding part was to consider the joy of living with your loved one over time rather than dwelling on personal loss. To me, this is proving to be a useful technique in an attempt to minimize one's grief.

Gigi42 I know this is so so hard. But my advice is to take the palliative care immediately. Medicare pays for it. My mom was on palliative care for six months and then they moved her to hospice. She stayed on hospice for four years until she passed. it has benefits as far as covering supplies and weekly visits from a nurse and CNA‘s to help with bathing, etc. I’m so very sorry. Sending so much love and hugs everything you said is spot on though I know in my case it was my parent versus a spouse. This disease is just terrible. On so many levels! But please I tell everyone? Do not be afraid of palliative care or hospice care. They really are your friend. Xoxoxoxoxoxo

Very well said with wisdom of someone who walked the path.
We appreciate your insights!

I barely post but you know my story - anticipatory grief….how I relate…greetings from London, soon to be France again for a few weeks….

It made some good points. Thanks.