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After My Husband Of 45 Years Died From Brain Cancer, I Fell In Love With A Wonderful Man. Now He Has Developed ALZ And Life Seems So Unfair.

A myALZteam Member asked a question 💭
Illinois City, IL

We are not married and don’t plan to be, but he spends much of his time at my home. Including sleeping here. He does go to his home for a few hours every day and takes care of things there, showers, and returns to my home. Time is fast approaching when he is going to need more care. He would like for me to move into his place, but I have been in my home for 46 years and I am hesitant to give it up. However, I know it would be harder for him to move in with me. He’s much more familiar with his… read more

May 20
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A myALZteam Member

Thank you KerryAWill. I have always been a caregiver. I attribute it to the fact that my mother was an RN and I learned it from her. Hopefully a decision won’t have to be made very soon, but it’s always there in the background.

May 20
A myALZteam Member

Dear Dig, What a sad development after finding someone to share life with again following the death of your husband. Lots of tough issues and decisions. My only suggestion would be to make sure you take care of yourself first before trying to accommodate the increasing needs for support and care he most likely will require if his cognitive impairment progresses. Don't give up the security of your home and routines to make him more comfortable at your expense. It may sound unkind but I'm just suggesting maintaining all that is safe and important to you. I know very little about you and your situation but I think it's always good not to make any big decisions quickly without getting sound legal advice. I hope you have trusted family and friends whom you can discuss all of these issues with. Sending support. Take care.

May 20
A myALZteam Member

Sending prayers and hugs, I would gently suggest that you not change the living situation. Without knowing all the particulars, if your loved one needs the care of a facility down the road (I found out the hard way with my Mom), you have to spend all your assets before Medicaid picks anything up (she never qualified). I promise I don't mean to sound harsh, but you have to take care of YOU (not knowing if you have children/he does). You can care for him, help him get care, ensure his care is safe/healthy, but it may be prudent to not mix households. I am just so very sorry you are both going through this. XOXO Side Note: I also found with my Mom that Palliative Care kicked in and Medicare paid for EVERYTHING, she was on Hospice within a year, and they paid for even MORE (Medicare did) i.e. supplies, a Broda Chair, Air Mattress <---THIS was CRITICAL to her comfort when she became bed ridden. Contrary to belief, you CAN (my Mom was) be on Hospice for years. Its 100% paid for by Medicare. It was the only saving grace in my Journey with my Mom in NC. XOXO Edited to add: My Mom was on Hospice for FOUR/yes 4 - YEARS....so please don't let the stigma of the word Hospice throw you off. You/Your Loved one paid taxes and into the system for all your life - you should take advantage of all the benefits/coverage and not feel bad about that. XO

May 20 (edited)
A myALZteam Member

I would suggest to stay where you are comfortable. Over time my wife forgot that we lived in our house. When we pulled in our driveway she wouldn't reconise it. Later on she would sit on the sofa and tell me she wanted to go home. Some nights this would go on for hours. This is a horrible illness and can be somewhat different for all of us.

May 20
A myALZteam Member

You should not sell your home even though you may end up spending most of your time at his place. If your going to take care of him on this difficult journey This is the perfect time for him to make you his POA for medical a d financial and a living will and last will and testimony. As Alz can progress quickly and these will give you the right to make decisions and speak on his behalf. This is a very difficult long journey
🌹😒

May 21 (edited)

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