It was around this time last year when my husband started getting up four to five times a night. I was unable to get anything done and felt like a walking zombie from lack of sleep. He woke and went on a hunt through the house opening doors, closets and cupboards looking for past dogs, food and clothing. He was also on edge with frustration and agitation. Drugs were prescribed which put him in a comatose like sleep pattern and peace was restored. Andy slept 18-19 hours a day for months until I decided to set a sleeping schedule because I missed him. I now wake him by 9:30 by playing his favorite music and serving breakfast. He stays awake for three plus hours and goes back to bed for a 3 + hour nap. The schedule is working well for us.

My mom sleeps until 11:30-12. This makes it 15 hours a day. She is at home with me so I put a barrier cream on her in case she weather pull up. She’s not soiling at night, so that’s not a problem.

The nurse with hospice told me to let her sleep until 11:30-12 but not later or she wouldn’t sleep well at night. I get in all of her meals and snacks, ensures before bed. But nurse also told me that they’d sleep more and more and eat less and less and this is normal. She moves her legs enough not to get blood clots. HTH someone 😊♥️

Hubby has lost even more weight, now 145 lbs. Won't sleep at night , Staying up till all hours in the wee morning, and they complain to me about it. I said well what the hell do you expect when you let him sleep most of the day.I asked them to rethink this whole situation.Get him back on track with his usual routine . There is nothing I can do about it. . After a few days , he is back to his routine . They get him up at 7.30 for breakfast which has always been his main meal of the day and he eats cereal, 4 pieces of toast with peanut butter and jam, juice and coffee. so they tell me.He has a morning snooze. Eats his lunch and is put to bed at 1pm They get him up around 4ish. Eats supper at 5 pm and is put to bed at 8.30 ish - 9 pm.He sleeps throughout the night AND is putting on a few pounds. Medications are keeping the aggressiveness at bay.He seems much happier now and so is the staff. I get him outside as much as I can.Fresh air is good for them.For my hubby , his routine works best for all.

Interested in this post as it is a question relevant here too. I do let Mum sleep as she wishes. Not sure if that is the right way to do it though. Mum isn’t a night wanderer though she does sleep a lot during the day now too. Usually sleeps most of the day in her chair . It seems to worry her that she sleeps so much but I know as the disease continues that is what happens. I leave her to sleep unless we have appointments or activities planned.

This question came up at a meeting I had with my doctor, my nurse practioner, and 2 head staff at the nursing home this morning They told me that it is ok to let Don sleep under medication from 7 pm till 10.30 ish am the next day. Even if he has pooped his diaper , even though he has not eaten or drank since that night before , even though he is a diabetic , they won't touch him and that it is ok to let him sleep till he wants to or the drugs will let him wake up. I have a real hard time accepting that this is what they are doing to him. I pray God will show mercy on Don and take him home where he will be in peace.What a life to have to live.