We had my mom on a number of different drugs too, most of them can only MAYBE SLOW the progression. They had her on Aricept and when we found it wasnt helping we stopped them and kept with the heart, cholesterol etc drugs only and worked on keeping her comfortable as possible psychologically and physically.

The doctors just want to add more and more meds every time we go the office. So far MIL's son has told the Dr's NO more meds..she is going broke taking meds, most of which they say might help her. The meds we focus on are the one's for her heart....If she wants to take the others, we have fine, but we are not trying any others that MIGHT help....just making the drug companies rich and us poor ...when its gonna be the same outcome at some time

I am also in South Africa and as you said there is just no information available, have to look it up on the internet or on this site which helps a lot. I also want to know what to expect with my dad and what he is experiencing now is it normal for this mysterious illness, everybody thinks it is just a memory loss, but it involves so much more

I was told the same thing Doreen, which is true, but I still feel that more information about the disease itself should be given. There are certain things that happen to every sufferer but i think the professionals dont want to "give bad news" or try and protect the family and keep this to themselves. If you know what to expect...even if it is 'some time in the future" you can be better prepared for it psychologically and also be better prepared in your decisions for caretaking of that person. You are then also better able to assist the person when they need it most because you KNOW what is happening. I really feel this is a disease that is "cast aside" by the professionals as it is too difficult to explain to the family and they really have no answers. I wouldnt wish this on anybody

I was told nothing my husbands diagnosis was told to me over the phone all I got told was no two people are the same