Am I The Only Caregiver Who Hesitates To Invite Friends To Our Home Or For Outings Like Movies Or Dinner In Restaurants?
I am concerned they prefer to be with other friends but will come and occasionally invite us because we are a "special needs couple." My husband is no longer able to help prepare for company (which is okay) or really participate in conversation unless someone is kind enough to make that one attempt to engage during the course of an evening. We do go to some group outings through church groups (movies and dinners) but even then I often feel a bit out of place.
Interesting tidbit - For several years we have been part of about 30 people from our church who are invited monthly to participate in coordinated potlucks of about 8 people held in private homes. There are three participants who have Alzheimer's or other dementia. Recently there were two of these individuals living with a diagnosis at the same dinner. They really didn't cause a problem but both dozed through much of the conversation. My RAC tells me he enjoys going so we will continue as long as possible. Once or twice a year, we host in our home.
I find true family friends dont mind coming to our house as they understand the illness. I thinkd the ones that sat away is beause they dont know aboutthe illness or feel shy or that they may say the wrong thing
That came up recently for us. We had dinner with 2other couples we have known for close to 30 years. He still knows who they are (although not until he saw their faces), but he was not able to keep up with the conversation. Afterwards he told me it was hard for him. When he first told me, I felt very sad--for him and for me--as his world was getting smaller, that meant mine was as well. After thinking about it, I think we will try meeting with just one couple at a time--fewer people to try to engage; less conversation to try to follow. Will see how that works.
I invite as many people as I can, I find my family comes but his friends and family tend to stay away.
I am also having the same issues. No one visits much any more (including family) and getting out of the house or going to crowded public places is out of the question now. I understand your feelings of isolation and often lonely. People just always think he is being rude or insensitive and do not understand he has an illness. Hang in there :)
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